(CNN) – A healthy two year old went from an active toddler to a quadriplegic within hours. His diagnosis is so rare the chances of getting it are one in a million. Developmentally he excelled.
Two and a half year old Nolan Nachreiner was always on the go. But on January 30th within one hour. Nolan went from an active toddler – to a quadriplegic.
Eric Nachreiner, Nolan’s dad said, “we gave him some milk in a sippie cup like we always do and we noticed he had some issues trying to grasp the cup.”
Soon after, dad Eric and mom Jennifer say Nolan couldn’t stand. He couldn’t even sit without falling over. They rushed him to children’s hospital where Doctor Kavita Thakkar and her team diagnosed Nolan with a rare condition called transverse myelitis.
It’s so rare – the chances of getting it are one in a million. In Nolan’s case – it started with a virus. Instead of his body attacking the virus, it attacked his spinal cord.
Eric Nachreiner said, “Hearing them say that and seeing the condition he was in, it’s scary and it’s frightening.”
Now at children’s institute Nolan undergoes physical and occupational therapy. Proof there is progress – he has enough control of his head and shoulders now that he can dance to Thomas the train.
But Nolan needs round the clock care. They’ll get to take him home next month – at the same time mom is expecting to give birth to baby number two.
Jennifer Nachreiner, Nolan’s mom said, “if I think about what life was like three months ago or if i think what about life will be like three months, three years from now, it’s too overwhelming. So what works today works today, and that’s how we have to move forward.”
Their Indiana Township home isn’t handicap accessible. And there are things Nolan will need for the rest of his life that insurance won’t cover. For this soon to be family of four life is now one day at a time.
Friends established a fund to help the family with expenses for medical equipment and home renovations.
There is also a Facebook page called “get well Nolan” where his family posts updates about Nolan’s progress.