Mother’s Heartbreak: Untouchable Baby

Mother's Heartbreak: Untouchable Baby
Rare disease leaves California infant nearly untouchable because of her extremely fragile skin.

LINCOLN, Cali. (KCRA) On October 12 Kirsti and Jason Kinkle welcomed their daughter, Kiira, into the world.

The next day they learned their daughter had a rare disease that makes skin-to-skin contact almost impossible.

“This is the worst disease you’ve never heard of,” says Kirsti Kinkle.

The Kinkles said their daughter was born with recessive dystrophic epidermolysis bullosa, a genetic skin disease which causes the skin to blister or even tear from rubbing, friction, scratching or even adhesive tape.

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